Happy halloween y'all! A day late!
Tuesday, October 21, 2014
Taking care of a special needs child is hard. It's frustrating, it's exhausting.
Being the parent to a special needs child brings feelings of worry, pain and constant questioning. What will be his struggles? Where will he be in 5 years? How can I prevent him from bullying?
When Blake was born we knew pretty much there was a 99% chance, after his brain bleed, that he would be diagnosed with cerebral palsy. The damage was so severe there was little to no chance that his muscle tone would not be effected. Even though we were told this in the NICU when he was officially diagnosed with cerebral palsy last year all my worries and questions came to the surface. My brain never stopping- will he, won't he, will it all be physical, will it be mental too? Our house isn't handicap capable, what about our vehicles? Question after question, thought after thought...sometimes I wish my brain would just stop and allow silence, even if only for five minutes. Five minutes without worry, without questions, without all of it. Just silence. Peace and quiet.
But alas, silence is not in my nature. So I've come up with a better idea. Acceptance! I'm a super planner so the idea of just being okay with not knowing what lies ahead of me is a sure fire way to get me flustered and provokes my searching for answers even more....but this time....at least for today I'll let it be. Let it be. If he walks great, if he doesn't that's okay to. If he can't speak fully we will find a way for him to communicate, if he takes after his momma and decides to learn to talk and then never stop....well we will come to that when we get there haha! If we have to make modifications to our house or cars that's okay too. Because no matter what the disability, no matter what he is able to do and what he isn't, it doesn't take away from the fact that Blake may just be....the coolest child I know! (And we have some pretty awesome cool kiddos in our lives!)
Monday, October 20, 2014
Saturday, September 13, 2014
Well, it is official I am the worst blogger ever! No post since July 23rd! Unacceptable! I could use the excuse that we've been busy, or life got away from me but honestly I didn't know how many people read or kept up with it---that was until I've been scolded by a few people asking why I haven't been writing....so here goes!
First update for those of you who don't see us often or follow on Facebook- our dear baby boy got his first big big boy haircut!
Looks like a totally different child huh?
We have made the most out of this summer planning, quite spontaneously, a little impromptu vacation to Chattanooga, TN which also included stops in Nashville and to the lake! It was a much needed week of relaxation and fun!
We enjoyed the downtown riverfront and aquarium, spent some time listening to some music.
We went up high hiking at rock city, and down low 1,000 ft underground to be exact at ruby falls!
We visited nashville, and enjoyed some time in the sun at kuttawa before heading back home too.
After all the fun of vacation it's always back to work! For Blake too! We have upgraded therapy and now have speech, occupational, and physical therapies weekly! He has started to regain some of his speech that he lost before the May stent in the hospital. He babbles, and has re-developed his "da" sounds which makes Zach such a happy and proud "da-da" and he even has been saying ah-zzzzzz (our dogs name) in his own special way!
Blake was fitted and now has his leg braces to help with his walking. Because of his cerebral palsy he walks with assistance on his toes- the leg braces help to keep his toes down to give him some stability! He is doing amazing in therapy since we got them!
We will try and keep the blog updated a little better with lots of cute pics and hopefully share some new videos with everyone.
Wednesday, July 23, 2014
Failing miserably at being a blog writer. As seen and verified by the fact that I haven't posted ANYTHING in almost a month! I found the older Blake is getting and the more active he becomes the more time I spend chasing after him, rather than writing about him. Ever since the admission back in May Blake has become so much more active and has progressed astoundingly in his developmental skills. He is pulling up on everything, and waking furniture. Which has in turned cause some bumps and bruising but is something we couldn't be more excited about!
Since the last blog post we have been to the lake, out on the boat, to a music festival, and hung out with some dear friends. Blake has enjoyed the summer and we have been making sure to cherish every moment we have while the weather is warm!
Our first adventure was to the ROMP in owensboro ky. We quite enjoyed the music, the people and of course the ICECREAM!
Our second trip was to the lake during Fourth of July weekend. We enjoyed the water, the sun and spending time with family.
We have mastered the pout....
And we have spent as much time as we can snuggling with our sweet- growing up to fast- miracle baby!